Articles
Abbey-Bernadette's story
- Details
- Category: Fundraising
- Published on Saturday, 11 February 2012 12:04
- Hits: 6108
My story By Abbey-Bernadette Roberts
I've been a Fibromyalgia suffer since I was 15, over the past 10 years I've found it extremely hard to get a diagnosis, support or simply to get people to believe me.
The 12th May, every year, is Fibromyalgia Awareness Day, this condition has dominated my adult life & I decided I wanted to commemorate a decade of suffering by doing something positive & doing a sponsored walk, one mile for each year I have had Fibromyalgia.
For those of you who do not know about this condition please follow this link for more information. http://www.fmauk.org/whatisfm
In October 2011 my fiance Patrick raised money for FMAUK by running the Liverpool Marathon, this is my own personal marathon as whilst Fibromyalgia took hold of my body, I've changed from a very active dancer at 15 to a 25 year old who is racked with pain & often needs a walking stick just to get through the day.
I am hoping by doing this walk that I raise money & awareness in order to help current sufferers & to hopefully make it easier for future sufferers to be able to get diagnosed much sooner & to have better support provided for them.
Please help me do this, any donation is greatly appreciated. Thank you. You can donate here: http://www.justgiving.com/Abbey-Bernadette
Highlights
.png)
.png)
.png)
.png)
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
