Events Organised by ACOFIFA for International Day of Fibromyalgia
SATURDAY, MAY 12th
INFORMATIVE SESSIONS
Dr. Fernandez Sola will discuss Central Sensibility Illnesses including Fibromyalgia, Chronic Fatigue Syndrome and Multiple Quemical Sensibility Syndrome. Dr. Fernandez Sola is an Internal Medicine Consulting Doctor at the Hospital Clinic of Barcelona and an Associate Professor at the University of Barcelona. At these sessions we will also discuss the latest administrative changes and cuts brought by the Health and Labor reforms in Spain, and how these are affecting FM,CFS and MQSS Patients. At the end of the day we will read the Manifest that has been agreed upon at the National level.
Read more: Events Organised by ACOFIFA for International Day of Fibromyalgia
Liam and Kieran Tough Mudder 2012!
Please find the message below about Liam and Kieran deciding to undertake a gruelling Special forces assault course in order to raise money for FMA UK and the local support group in Fife. Please support them in their efforts by donating at their Justgiving page.
Hi Everyone, my brother Kieran and I will be taking part in a British Special Forces designed assault course at Drumlanrig Castle (along with other friends running for different charities) outside Dumfries on 15 July 2012. The 12 mile course is (rather worryingly) billed the ‘toughest event on the planet’ and includes 25 military obstacles. Physical endurance, stamina, teamwork and camaraderie will be put to the test.
Kieran and I are fundraising for FMA UK to raise awareness for a condition our Mum Fiona was diagnosed with in 2009. Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder for which the cause is still unknown. People with Fibromyalgia suffer chronic widespread pain, which can be described as burning, throbbing, shooting, or stabbing.
Aberdeen Support Group Celebrates 10th Birthday
We have been working hard in planning our celebrations. On Saturday 12th May we will be holding our celebrations at Union Square shopping centre in Aberdeen from 10am - 4pm.
FibroAwareness Fibro Fun Day - Sun 13th May
The FIBROAWARENESS CHARITY is holding a fundraising and awareness event to help spread the word and raise the profile of Fibromyalgia. The day will be packed with great things for Fibro
sufferers and fun filled activities for adults and children, so bring along your family and friends.
It is being held on Sunday 13th May from 12.00 - 5.00pm at Kingswood House, Seeley Drive, West Dulwich, London SE21 8QR
Fibro Marathon for FM Awareness
Hazel Borland of Fibro PaIN support group is hoping to raise some funds and awareness of fibromyalgia and FMA UK for International Fibromyalgia Awareness Day on Sat 12th May, and had this to say:
I plan on doing a marathon but this wont be a 26 mile run - what I am doing is a FIBRO-MARATHON- a 26 minute walk !!!
2020Health Survey on Electronic Health Records
It has recently been announced that patients are to receive online access to their GP-held electronic health record (EHR) by 2015.
2020Health are conducting a survey to find out if having access to patient records will encourage improvements to health and wellbeing.
The survey also includes questions about what health apps you think would be useful in managing your health better, who should access records about you and what issues around privacy concern you most about maintaining your own record.
If you would like to take part in this survey, please go to:
The survey will close on Friday 18 May 2012.
Praise for the FMA UK website
Nursing Standard has praised "the excellent website from FMA UK" on their website. This is a most welcome piece of recognition. The site is run entirely volunteers and it is a constant struggle to continue to feature the amount of information that we receive about fibromyalgia. The provision of forums as a support resource would not be possible without the volunteer moderators.
Nursing Standard concludes its review with "There is no doubt that fibromyalgia can be a dispiriting condition. This site will help those in need, as well as the relatives and professionals who care for them" and this indeed summarises the purpose of the website and what the volunteers have tried to do. We continue to ensure that there is an information resource available for anyone that is interested or affected by fibromyalgia. It is here to provide support when required and sign post to other services when further support or advice is required.
Once more thanks to Nursing Standard for this recognition. You can read the review here.
To be featured on the Nursing Standard website review section they recognise that our site "is a valuable resource for nurses and healthcare professionals."
More Articles...
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- The Fibromyalgia Border 2 Border Challenge!
- Disabled Car Insurance
- Possible Blood Tests to Identify and Monitor FM
- Michelle Skydives for FMA UK
- Did You Keep Your New Year Resolutions?
- Online Survey about Personality, Sleep and Mood
- Recording Your Atos WCA Assessment
- Chippenham Spring Ball
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