Magazine Features February 2010
Why not settle down by a warming fire and get absorbed in the great features we have this month.
Our cover girl, singer/songwriter Shelly Quarmby, tells her heart wrenching story about her struggles with fibromyalgia and how her experiences have inspired her to release her first album: Change, the proceeds of which will be donated to FMA UK. Shelley writes:The lyrics were inspired by events in my life that became difficult to handle on top of having FM. I felt like I literally had no fuel to keep going, something would perk me up, but only for a while. I became frustrated with others, almost jealous because I couldn't be the best I knew I could be. So although I unite with all those other independent musicians performing today, I also identify with a group of people in the UK and across the world affected by fibromyalgia…
I think every one of us battles with trying to exercise; can fibromyalgia and exercise really coexist?
This is the question that Melanie Forde addresses offering useful tips and advice about how to get going with and stick to an exercise programme:It is important to be realistic when planning exercise as consistency is the key to beneficial exercise. Living with FM causes us an enormous amount of frustration so we need to try not to add to that by trying to do things that are out of our reach. We need to tally up our resources. Think about each of the following:..
Subscribe to Fibrmoymalgia Focus - FMA UK's monthly magazine.
FM Conference Weekend Away Count Down
With a little over a month to the final closing date for bookings for the Fibromyalgia Conference & Pamper Weekend in West Sussex, anyone interested in listening to top health professional speakers with an opportunity to learn, laugh and have fun, should hurry and book now.
Although we have no single rooms left, we still have twin singles and two room chalets for three friends. Of course that does depend how many people you can get in one double and one single bed. All accommodation is en suite with colour TV, tea making facilities, etc. There are also a few special chalets for those confined to wheelchairs.
Change: Shelly's story of her fm and her music
Shelly has just released her new six song EP “Change” on the 16th November. As a singer-songwriter she is well accustomed to change and the challenges associated with creating this labour of love. She has managed this excellent achievement while battling with fibromyalgia. Shelly mentions that her
"lyrics were inspired by events in my life that became difficult to handle on top of having FMS. I felt like I literally had no fuel to keep going, something would perk me up, but only for a while."
As well as giving us some inspiring lyrics, Shelly has generously decided to donate the title track's proceeds to FMA UK. You can preview some of the tracks here and buy a copy from here. Her full story features in a February's issue of Fibromyalgia Focus.
Jan 2010 eMail Newsletter
January's email newsletter is in the process of being sent out to all website users past and present unless they have opted out. If you have not received your copy yet you can always look at it online here. We intend to send these out each month with some special editions as required when there is breaking news.
Stretching and Strengthening Exercise in Fibromyalgia Patients: a Randomized Clinical Trial
These were divided into three groups: Group 1 strengthening exercises ie exercises that aim to improve the muscular strength in the arms and legs; Group 2 stretching exercises ie exercises that aim to improve the muscular flexibility of arms, legs and spine and group 3 control group ie no kind of exercise.
Jazz Pharmaceuticals announces submission of JZP-6 NDA for treatment of fibromyalgia
Jazz Pharmaceuticals, Inc. announced it has submitted a New Drug Application (NDA) to the U.S. Food and Drug Administration for JZP-6 (sodium oxybate oral solution) for the treatment of fibromyalgia.
The submission is based on their clinical development program for JZP-6, including results from two Phase III clinical trials. In these trials (you can read our previous coverage here), sodium oxybate significantly decreased pain and fatigue as well as improved daily function and sleep quality. Sodium oxybate has not been evaluated by regulators for the treatment of fibromyalgia and is not approved for this use.
The full press release can be found here.
Read more: Jazz Pharmaceuticals announces submission of JZP-6 NDA for treatment of fibromyalgia