Articles
New book about fibromyalgia and chronic illness
- Details
- Category: General Information
- Published on Friday, 08 June 2018 20:27
- Hits: 3411
‘Dear Chronic Illness’ book features a collection of short letters written by young people, addressed to their long-term illnesses and impairments, detailing what they would like to say to them. The letters are not your typical sob stories, and provide a light-hearted and humorous commentary on the writers’ various experiences, and also giving insight into the challenges of navigating life whilst learning to live with their conditions.
The eBook is available to pre-order on Amazon now: https://www.amazon.co.uk/Dear-Chronic-IllnessPippa-Stacey-ebook/dp/B07BS6DS1G/ref=lifeofpippa21
The paperback will be available to order on the same page from the 14th June, and also from Wallace Publishing: https://www.wallacepublishing.co.uk/pippastacey.html
Pippa Stacey, who compiled the letters into the book said: ‘’All royalties from the book are to be donated to Spoonie Survival Kits, meaning that each book sale will directly equate to funding the social enterprise and continuing our development. This will hopefully enable us to raise even more funds for charity, and create even more accessible opportunities for fellow chronically ill and disabled people’’. Contact Spoonie Survival Kits: This email address is being protected from spambots. You need JavaScript enabled to view it.
Pippa Stacey: This email address is being protected from spambots. You need JavaScript enabled to view it. #DearChronicIllness Facebook: /spooniesurvivalkits Twitter: @SpoonieSurvival Instagram: @SpoonieSurvival Etsy: 'Spoonie Survival Kits'
Highlights
.png)
.png)
.png)
.png)
.png)
Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.
FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.
FMA UK offers a range of support and information including:
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run by volunteers, most of whom have fibromyalgia.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
