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Luke Bowes, from Thurrock, will run 100km to help those living with fibromyalgia
- Details
- Category: General Information
- Published on Friday, 29 September 2017 15:56
- Hits: 3666
Luke told us: ‘’My Mum and one of my closest friends, Abbie, suffer from Fibromyalgia. Since I've known about my Mum's and Abbie's Fibromyalgia I now know another 2 other people who suffer from the condition.
Whilst my mum has found something that helps, she still suffers some days more than others and that was only after being lucky enough to get some private advice/treatment something that not everyone is able to afford. Unfortunately Abbie has not found something that works for her yet, as I mentioned above treatment is very much pot luck and constantly trying different things, which is incredibly difficult in a situation where you are unable to work, yet you don't get any support to help, no matter how much you try! To see them on their worst days is very upsetting, they can be in so much pain that they struggle to get out of bed and perform simple tasks we take for granted.
So I'm planning to run/jog 100K between London and Brighton in May 2018 in order to try and raise as much money as possible to help raise awareness and support other fibromyalgia suffers. What my body will feel training and running that distance is, to be honest, probably a small taster of what they can go through on a daily basis.
Any donation or support you can give is greatly appreciated! Thank you!’’.
To donate visit Luke’s JustGiving Page:
https://www.justgiving.com/fundraising/lukesrunning100k
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Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.
FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.
FMA UK offers a range of support and information including:
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run by volunteers, most of whom have fibromyalgia.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
