Articles
Event in Cardiff, 13th August
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- Category: General Information
- Published on Thursday, 07 July 2016 10:33
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Gail Neal and her son, Adam Neal, together with the Cosplay community are organising a fibromyalgia awareness event in Cardiff on the 13th August in the Cardiff City Museum. There will be a street collection across Cardiff city centre for FMA UK.
Gail told us: ‘’Adam and his colleagues are raising money for FMA UK as he has experience of seeing how Fibromyalgia has changed my life and my daily struggle to manage the condition. He has found that there is little or no support in our area for Fibromyalgia and that the local medical profession is ill equipped to effectively support patients with the condition. He also wishes to raise awareness to the general public about this syndrome to enable people to be more tolerant towards people with Fibromyalgia’’.
We hope that you can attend the event and support the fundraising.
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Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.
FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.
FMA UK offers a range of support and information including:
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run by volunteers, most of whom have fibromyalgia.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
