UPDATE on LARGEST Genetic Study of Fibromyalgia in the UK
Kings College Hospital have given us an update on the Genetic study they are currently undertaking. Almost 1000 blood samples have been received - but the study aims to reach 2000. So if you have not yet taken part, please consider doing so.
Update2: We have had an even more terrific response to our request for research volunteers, with another 1000 or so people signing up in the last month. Thank you so much! We now have more than enough to deal with so please could you take the advert off the website, and we will de-activate the URL.
Best wishes,
Frances
Full details are available below:
UPDATEon the LARGEST genetic study of fibromyalgia in the UK!
A big thank you to all volunteers who have provided blood samples so far. We have been busy processing the donations and now have the following:
- 936DNA samples
We are still aiming for 2000 DNA samples and continue to welcome new volunteers...
Genetic studies will begin when we near our target of 2000 samples.
Many more people than this have registered - if you have registered but have not yet received a blood donation kit, please bear with us as we continue to send kits out – the response has been most impressive. We will post the kit to you as soon as we can.
If you have fibromyalgia and would like more information about the study, please call us on 0207 188 1928. On registration you will be sent a questionnaire, a blood donation kit and instructions. Or you can register online at http://www.dtrsurvey.co.uk/fibrogene
Thank you once again.
With best wishes,
Dr Frances Williams
Reader and Hon Consultant Rheumatologist
King’s College London
St Thomas’ Hospital
London SE1 7EH
Highlights
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
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- Local support group and helpline contacts
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
