Study to discuss your views on living with pain and working life
Articles - Medical Info and Drug Trials
Would you be willing to discuss your views on living with pain and working life? Researchers are looking for people living with pain to discuss how it might affect the ability to work and sickness certification. This will be at your convenience; you can be interviewed either face-to-face or over the telephone, or participate in a local focus group.
You might want to discuss experiences with your GP and employer, the new fit note, and benefits. We need to know more about how these issues are negotiated to improve the system. All data will be kept confidential and all reasonable expenses paid. If you are interested in finding out more, and are 18 or over, please contact the study co-ordinator, Elaine Heaver, at the Centre for Pain Research, University of Bath.
Online Survey: Your Help Needed.
Articles - Medical Info and Drug Trials
Utrecht University would like your help in participating in an online survey on the understanding or lack of it with regard to rheumatic diseases. Lack of understanding can be frustrating and problematic when it comes to getting the help we need with fibromyalgia.
This survey will look into the problems people have encountered. The following is the letter we received from Marianne Kool M.Sc. from the Dept. of Clinical and Health Psychology.
Tender points no more??
Articles - Medical Info and Drug Trials
For the last 20 years the American College of Rheumatology (ACR) criteria has been the method for diagnosing people with fibromyalgia. To achieve this diagnosis, patients were required to have:
- had pain in all four quadrants of the body for at least 3 months
- patients also need to have 11 out of 18 specifically chosen tender points
These tender points are areas of the body where it was easiest to test pain sensitivity in fibromyalgia patients.
So why do we need a new diagnostic test?
Well the tender point test was often not performed by GP's or rheumatologists, and when it was it was sometimes not performed correctly. A lot more is now known about additional symptoms like cognitive dysfunction and the new criteria allows for a severity score that will help evaluation of patients with marked symptom variability.
LDN Conference 2010 in Glasgow
Articles - Medical Info and Drug Trials
What was the conference all about?
Low dose Naltrexone (LDN) is a drug that was developed to combat drug addiction and overdoses but has found to be effective in combating other conditions when used at a much lower dose. The conference had particular relevance for fibromyalgia as the preliminary results of a trial of LDN’s use as a treatment for fibromyalgia were unveiled.
When LDN is prescribed for other conditions off list by doctors there is still the difficulty in obtaining it and getting it in the right dosage. Stephen Dickinson of Dickinson Pharmacy spoke of the supply chain, the process of obtaining LDN and the possible medications to avoid while taking LDN as well as those that can be taken at the same time. This Glasgow pharmacy is now supplying 2500+ patients from all over the UK with LDN prescriptions. These prescriptions are being written by over 680 GPs. And as more people are taking LDN more information is being found about suitability and interaction with other medications.
Big On LDN Conference
Articles - Medical Info and Drug Trials
Glasgow is the scene for the 2nd European Low Dose Naltrexone (LDN) Conference. Some information form the conference can be found below:
A lot has happened in the past year and this year’s conference is going to be a good one. We have a Doctor’s session on the Friday afternoon at the Essential Health Clinic and the conference follows on Saturday 24th April at the Thistle Hotel in Glasgow. We have a packed agenda with many eminent guest speakers and the conference will be chaired once again by Dr Tom Gilhooly.
Dr Jarred Younger, Stanford University School of Medicine will discuss the relationship and use of LDN with fibromyalgia. We hope to find out more information on his progress since the successful pilot study. More info on this can be found here. Although not on topic for the conference we may find out about his other work with T3 as well.Stretching and Strengthening Exercise in Fibromyalgia Patients: a Randomized Clinical Trial
Articles - Medical Info and Drug Trials
These were divided into three groups: Group 1 strengthening exercises ie exercises that aim to improve the muscular strength in the arms and legs; Group 2 stretching exercises ie exercises that aim to improve the muscular flexibility of arms, legs and spine and group 3 control group ie no kind of exercise.
Jazz Pharmaceuticals announces submission of JZP-6 NDA for treatment of fibromyalgia
Articles - Medical Info and Drug Trials
Jazz Pharmaceuticals, Inc. announced it has submitted a New Drug Application (NDA) to the U.S. Food and Drug Administration for JZP-6 (sodium oxybate oral solution) for the treatment of fibromyalgia.
The submission is based on their clinical development program for JZP-6, including results from two Phase III clinical trials. In these trials (you can read our previous coverage here), sodium oxybate significantly decreased pain and fatigue as well as improved daily function and sleep quality. Sodium oxybate has not been evaluated by regulators for the treatment of fibromyalgia and is not approved for this use.
The full press release can be found here.
Read more: Jazz Pharmaceuticals announces submission of JZP-6 NDA for treatment of fibromyalgia
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