BBC WatchDog are looking for your stories on ATOS
BBCWatchdog tweeted the following today:
I am sure that there are many with fibromyalgia that have had this experience. Please get in touch with here to submit your story. Perhaps this will have fibromyalgia featured on the programme.
Rod Liddle attacks invisible illnesses in ‘Sun’ newspaper
Rod Liddle is at it again and has decided to write an article in the Sun on the 26th January. He previously wrote a less than pleasant article on fibro a few months ago but has now decided to attack those already crippled by an invisible illness and launch his scorn on them Both ME and fibromyalgia are both recognised by the World Health Organisation as well as the NHS. Respected medical opinion and empirical medical evidence does not seem to sway him from his ignorant view of these illnesses.
It is below contempt to attack the weakest in a society and should not be allowed. We should not discriminate against the weak and disadvantaged and Mr Liddle's presumption to anticipate the ire that his article causes and suggest he is crusading against the benefit cheats feels insincere at best. Mr Liddle makes his living from using his 'comic wit' to take shots at various parts of our society and jumping on bandwagons.
FMA UK cannot condone his behaviour and finds it very offensive especially at a time when it is harder than ever to claim benefits that you are entitled to. Terminally ill people cannot get the benefits they deserve and those with fibromyalgia face a difficult time with a reduced quality of life and the increasing complex process to apply for the benefits they are entitled to. We would recommend that people that share this view to complain to the Press Complaints Commission and The Sun.
He has also taken the time to defend his actions on the radio programme "The Nolan Show" and unsurprisingly he shouts over people and continues his tirade all the time saying that he has sympathy for people suffering genuine illnesses. The full content of his article below. FMA UK are working to address this matter and see if we can achieve some redress.
Read more: Rod Liddle attacks invisible illnesses in ‘Sun’ newspaper
Music Magpie scheme - Donate your old CDs and DVDs !
Please Get Involved Today If You Have These Items To Spare !
Recycle & Help Fundraise For FMA UK by donating your old CDs or DVDs. If your interested in supporting FMA UK please contact Music Magpie on 08702 957 930.
FMA UK are piloting a new scheme to help you turn unwanted CDs & DVDs into cash for much needed fibromyalgia projects. We've teamed up with Music Magpie to offer you an easy way to recycle your old CDs and DVDs. Music Magpie have agreed to pay us 50p for every CD Album/DVD that meets their criteria. More information on their criteria below.
So what do you have to do to get your old music and films to Music Magpie:
- Phone 08702 957 930 and ask for a free collection box
- Collect as many CDs and DVDs as you can
- Arrange a free courier to pick up your collection
- musicMagpie will pay 50p for every CD album & DVD re-cycled
You can also get others to donate their unwanted CDs and DVDs by putting up a poster at your workplace or group?
Read more: Music Magpie scheme - Donate your old CDs and DVDs !
Talking therapy improves symptoms of chronic widespread pain
Arthritis Research UK has published a study on cognitive behavioural therapy over the phone to help with chronic pain. Below is an extract from the study and you can read the whole article by clicking on the link below.
Talking therapy provided over the phone can have a positive impact on people suffering from chronic widespread pain compared to usual care provided by their GP, new research has shown.
Patients who received a short course of cognitive behavioural therapy (CBT) over the telephone from trained therapists reported that they felt “better” or “very much better” at the end of a six-month treatment period, and also three months after it ended.
The Arthritis Research UK-funded trial led by the University of Aberdeen working with the University of Manchester was the first-ever trial of telephone-delivered CBT for people with chronic widespread pain.
Arthritis Reasearch article on talking therapies.
New FMA UK facebook page
Just published new FMA UK facebook page. You can find it here: http://www.facebook.com/ukfibro and we hope to make it a place for fibro info on Facebook.
The British London 10K Run
The 12th anniversary of the British London 10k run is scheduled to take place on Sunday 8th July just 19 days before the Olympic opening ceremony and using much of the course for the Olympic marathons.
FMA UK has places available in this prestigious event, giving an exciting opportunity to raise awareness of fibromyalgia as well as raising funds through sponsorship.
Last year I decided to give this a go. I had never done any long distance running before so didn't commit to this until I knew I could manage it. I downloaded a training programme from the Running Bug which worked really well. I surprised myself and increased my fitness considerably.
I now enjoy jogging (I wouldn't call my speed running) and am thinking about a half marathon for this year.
FMA UK Newsletter Winter 2011
Welcome to the winter newsletter from the trustees of FMA UK. A PDF version of the original Winter Newsletter can be found here. Our Trustee newsletters attempt to bring a view of what the trustees have been engaged in since the previous newsletter. We are the first to admit that these newsletters are not as frequent as we would like but we will try to keep you all as informed as we can.This newsletter covers the past 6 months and also gives an insight into some of the activities that we have planned for the coming year. We hope to have an exciting, busy and eventful year ahead of us. We also hope to engage with more people and have more volunteers helping out with the charity. We can only achieve our goals if we have the people to share the work.
Of course if anyone has any questions or something to help the charity then please do get in touch with a Trustee or Regional Coordinator.
Many thanks
Board of Trustees
More Articles...
- "Huge ESA victory – now you have till Tuesday to save DLA"
- Are you Spartacus? Support the #spartacusreport
- Age Concern Petition
- Research Partnership with PIP Health
- October meeting of the CPWG on Chronic Pain
- Book Review - Paintracking your personal guide to living well with chronic pain
- Disabled Car Insurance
- Policy Update: Putting the NHS on the side of patients
- Fibromyalgia Conference & Pamper Weekend
- Tips on Preparing Christmas Dinner
- Finally….Effective Treatment for Fatigue, Pain, CFS and FM
- Pain Summit 2011
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