APPG
Raise Awareness with the All Party Parliamentary Group on Fibromyalgia!
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- Category: APPG
- Published on Wednesday, 20 September 2006 21:17
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MP for Reading East, Rob
Wilson, updated the Reading Fibromyalgia Support Group on developments of the
APPG on FM during FMA UK Awareness week. The next APPG meeting at Westminster is on October
12th at 11 am.
Alice Theadom, a health psychologist, will be presenting her recent research
findings on sleep and fibromyalgia, accompanied by her colleague Dr Mark
Cropley.
It is vital that all fibromyalgia sufferers write to their MPs asking them to join the APPG on FM and to attend this meeting. A Template letter in word format is available here
Below is a list of MPs who have signed up to the APPG on FM. If your MP is not listed please write to him/her. You might like to ask your MP pertinent questions that would trigger a response from the DoH e.g. “What provision has been made by the DoH for Fibromyalgia sufferers”. This would then inundate the DoH with letters about the condition that they would be bound to reply to.
Read the full article with details of the Rob’s questions and replies he had from the DoH and MRC in November’s issue of FaMily.
Fibromyalgia APPG Members 2005-2006
Conservatives: Rob Wilson MP – Reading East, David Cameron MP –Witney, Robert Key MP – Salisbury, Graham Brady MP – Altrincham & Sale West, Tim Boswell MP – Daventry, Julian Lewis MP – New Forest East, Andrew Pelling MP – Croyden Central, John Gummer MP – Suffolk Coastal, Henry Bellingham MP – North West Norfolk, Philip Davies MP – Shipley, Shailesh Vara MP – North West Cambridgeshire, Robert Goodwill MP – Scarborough and Whitby, Michael Gove MP – Surrey Heath
Labour: Russell Brown MP - Dumfries & Galloway, Linda Waltha MP – Stourbridge, Anthony D. Wright MP – Great Yarmouth, Ian Austin MP – Dudley North, Adrian Bailey MP – West Bromich, Richard Burden MP – Birmingham Northfield, Andrew Dismore MP – Hendon, Ian Lucas MP – Wrexham, Jim Devine MP – Livingston, Rosie Cooper MP – West Lancashire, Natascha Engel MP – North East Derbyshire, Gerry Sutcliffe MP – Bradford South, Paul Clarke MP – Gillingham, Martin Salter MP – Reading West, Jeff Ennis MP – Barnsley East & Mexborough, Eddie O’Hara MP – Knowsley South, Bob Marshall-Andrews – Medway, Ian Gibson MP- Norwich North, Joan Humble MP- Blackpool North & Fleetwood, Michael Connarty MP- Falkirk East, Andrew Miller MP- Elsmere Port & Neston, Eric Joyce MP- Falkirk, Martyn Jones MP – Clwyd South, Stephen Hesford MP –Wirral West, Claire Curtis-Thomas MP – Crosby, Frank Field MP – Birkenhead, Mike Wood MP – Batley & Spen:
Liberal Democrats: Norman Lamb MP – North Norfolk, Mike Hancock MP – Portsmouth South
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
