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About FMA UK PDF Print E-mail
Monday, 05 September 2005
Fibromyalgia Association UK is a registered charity administered by unpaid volunteers from the Chair down through the ranks. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia.  FMA UK was established in order to provide information and advice to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.

In order to raise awareness of Fibromyalgia, an All Party Parliamentary Group (APPG) has been set up to bring greater awareness and education of the illness and related problems associated with the condition. It also aims to encourage NHS and other funding for new research projects. At present there is very little research being carried out in the UK and sufferers are told there is no cure. We hope that will be a statement of the past.

Fibromyalgia is a chronic condition of widespread pain and profound fatigue. The pain tends to be felt as diffuse aching or burning, often described as head to toe. It may be worse at some times than at others. It may also change location, usually becoming more severe in parts of the body that are used the most. The fatigue ranges from feeling tired, to the exhaustion of a flu-like illness. It may come and go and people can suddenly feel drained of all energy - as if someone just "pulled the plug".

There are treatments available which can alleviate some of the symptoms but the majority of these are in the private sector and as most sufferers are forced into early retirement, or cannot work at all, the cost of such treatment is prohibitive.

 
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