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Awareness Week 8th - 15th September 2007 |
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Sunday, 02 September 2007 |
Press Release: Make
Fibromyalgia Visible
Many
people are still not aware of fibromyalgia and the devastating effects it can
have on people with the condition and their families. During National Awareness Week local support
groups around the country are being encouraged to make themselves noticed by
wearing not only the yellow ribbon with black spots, but clothes in yellow and
black. It's easy to miss a ribbon, but a
group of people all wearing yellow and black makes an impression.
Why
should we go to these lengths? It is
estimated that 2% - 4% of the population could have fibromyalgia and many of
these will have spent years suffering pain and fatigue before being diagnosed. Others are worrying about their pain and
fatigue without being diagnosed. Many
people have been diagnosed because they recognised the symptoms from media
information and asked their doctors if fibromyalgia could be the cause of the
different aches and pains that they had been trying to cope with.
People
with fibromyalgia typically have a range of symptoms which can change and vary
from day to day.
These include:
- Muscle
pain and stiffness
- Fatigue
- Specific
tender points
- Disturbed
sleep
- Poor
concentration
- Irritable
bowel syndrome
Because
the symptoms vary in intensity from day to day, planning work and even daily
life can be difficult. The feeling of
letting people down can add to the frustration and stress and exacerbates the
condition. Not understanding why this is
happening can lead to a sense of guilt and worry about possible causes for the
sufferer and misunderstanding by employers, family and friends.
If
you know 100 people it is likely that 2 of them will develop fibromyalgia,
especially if they are women. This means
most people will be affected by fibromyalgia directly or indirectly at some
time in their lives.
For an information pack please send a 40p large sae to:
Fibromyalgia Association UK, PO Box 206, Stourbridge, West
Midlands, DY9 8YL
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