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Each month articles included in the
Fibromyalgia Association section of the FaMily Magazine will be previewed on
this site. If you like the look of what you see you can decide to purchase a year's subscription.
International Fibromyalgia Awareness Day - 12th May 2007
Do you ever wonder how the profile of
Fibromyalgia can be raised? Do you ever wonder who actually tries to raise the
profile of Fibromyalgia? Well the answer could be right on your doorstep! As
most people are aware FMA UK
is run by a board of trustees who do their utmost to raise the profile of
fibromyalgia (along with many other things). Group leaders (the majority of
whom have fibromyalgia themselves) and their members across the country also
work tirelessly to raise the profile within their own area, but for us to make
a greater impact we need YOUR support...
Pregnancy and Beyond-From Preconception Care to Postnatal
Success with Midwife Denyse Moore
I am delighted to introduce a new
columnist: midwife Denyse Moore, who, over the coming months will be taking us
on a journey from 'preconception care to postnatal success'. Denyse has worked
as a midwife for 10 years and currently practises at St Mary's Hospital in Portsmouth. Due to her
professional training and her personal experience of living with fibromyalgia
she is able to offer a unique insight into the various problems and issues
facing women with fibromyalgia who wish to embark on this exciting journey of a
lifetime. This month we start with advice on what to do before you consider
conceiving....Subscribe to FaMily Magazine to get more of theses articles
Fibromyalgia, Allergies & Chemical Sensitivities by
Kathy Longley
I know that I am not alone in
developing allergies seemingly as a result of having fibromyalgia, but from
talking to other people I appreciate that I am actually one of the lucky ones.
Others have not only developed allergies but multiple chemical sensitivities
which play havoc with their daily lives. They describe sensitivities to all
kinds of different odours, as well as bright lights and noise; it is as though
they have become supersensitive to the world around them. Maureen Jamison's
life has been turned upside down by her extreme reactions to the chemicals
around her. "I have sensitivities to almost everything," she
explains, "washing powder, perfume, aftershave, cigarette smoke, paint and
all different kinds of food. In fact it is easier to tell you what I am not
sensitive to!"...
Fibromyalgia Association Volunteer Awards 2007
The association relies on volunteers
and most of the time their efforts go unsung, but greatly appreciated. Each
group and helpline has volunteers that are so vital to supporting others with
fibromyalgia. Last year, for the first time, we recognised the dedication and
hard work of our volunteers with special awards. We are now starting the
process of choosing this year's award winners, to be presented in May. There
will be awards for each region and then an overall winner....
Trustee Janet McFarlane Resigns
FMA UK is sad to announce the resignation
of trustee Janet McFarlane. Janet has decided the time has come to give
somebody else the opportunity to carry on her dedicated work in Scotland,
"There comes a time when I have to think of me. I have enjoyed improving
communication between the groups in Scotland so that they now work as a
team and have identity as a region. I have also put things in motion in Europe and it is now time for someone else to
continue." She has plans to start a painting course and hopes to enjoy the
challenges that being creative can bring. Also, freeing up her time will allow
her to enjoy her grandson and put her energies into entertaining him....
Diary of a Drug Trial by Sally Russell
So how did I feel taking the full dose
of milnacipran? Not very happy! Serves me right for offering to do the trial in
the first place. But, as a doctor friend of mine said, 'If it wasn't for mad
people like yourself we wouldn't make the advances we have done in medicine!'
By
the time I saw Dr Serena Carville for my next appointment the situation had
settled down a bit. I felt that I was experiencing increased tinnitus and a dry
mouth but was sleeping okay and possibly dreaming less, although I still felt
constantly tired....
The Black Country Support Group Christmas Dinner by Suzanne Trueman
Our December meeting, I have to admit
was the best I have ever been to. It was very different from our usual
meetings. After a brief welcome and everyone signing in, we abandoned all
formalities and enjoyed the huge amount of food which everyone had generously
brought in. There were mountains of scrumptious goodies....
Pub Crawl Fund Raiser
On behalf of the Hull Support Group,
member, Chris Stevenson, raised £235 by persuading 16 of his mates to accompany
him on a pub crawl lasting from 11 a.m. in the morning until midnight, that's
dedication for you!...
New
DLA Guidance from March 2007
FaMily magazine has obtained the final draft of new guidance
on CFS/ME to be issued to DLA decision makers in February 2007 and go live in
March 2007. Disappointingly fibromyalgia still does not warrant its own
document and is mentioned in passing as another condition that may occur with
CFS/ME. In the absence of any other guidance there is no doubt in my mind that
the decision makers at the DWP will use this same document for FM sufferers...
Chocolate's Good for You - It's Official!
The news anyone with a sweet tooth has been waiting for - chocolate is
officially good for you. Doctors at Hull
and East Yorkshire Hospitals NHS Trust have found eating small bars of dark
chocolate every day helps stop symptoms of chronic fatigue syndrome (CFS)....
US drug
companies vying to create new FM drug
With no test to confirm fibromyalgia, doctors rely on
patient complaints of symptoms and subjective responses to physical exams. As a
result, some physicians are wary of viewing it as a distinct ailment. Still, a
who's who of pharmaceutical companies - including Pfizer Inc., Eli Lilly &
Co., Forest Laboratories Inc. and Wyeth - are looking to seize on a market now
dominated by older anti-depressants as well as painkillers and other drugs.....
HOT TOPICS FROM THE FORUM
Some people are more affected by others by the weather and
by changes to it. Many complain of
symptoms being alleviated or worsened by changes. But you will be pleased to
know the scientists are on the case. They are now looking at meteorology, medicine and biology and have created a
new science called Biometeorology....
Latest
Research
- A Pilot Study of External Qigong Therapy for
Patients with Fibromyalgia.
- Increased cancer risk in patients referred to
hospital with suspected fibromyalgia.
- Autonomic activation and pain in response to
low-grade mental stress in
fibromyalgia and shoulder/neck pain patients.
Mobility -detach the emotion and be
positively realistic! with Life Coach Pam Wright
My dictionary describes mobility as ‘shifting position
readily' and ‘not fixed'. Nothing on
this Earth is static. The planet is moving constantly although we are not
always aware of it! In people, movement
creates wellbeing (even when it is triggered by pain!). Exercise, at whatever level, is just one
aspect of mobility, but so too is having a change of scene by getting away from
the confines of your home. Without
movement, the body systems slow down.
Chronic inactivity creates problems of an ever-decreasing circle of life
experience and interest. This can lead
to a total loss of independence. Lower
expectations become a habit creeping up on you until something awakens you to
the path you are on and you take control once more. It's never too late....
Christine's Cookbook
Delicious and fibro-friendly chickpea
salad
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