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 On Monday September 8th, there will be two talks in Berkshire by Daniel Austen. At 2pm, he will be talking at Wokingham Hospital, near Reading, and from 6.30pm he will be talking at the Open Meeting of the West Berks ME & Fibro Group at the West Berkshire Community Hospital.
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Normanton Gala and Parade |
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Castleford and District Support group are taking part in the
Normanton
Gala and Parade on Saturday 13 September.
We have an Awareness
Stall, and tombola stall and we have walkers, with me in wheelchair (as a
float) Walking are Cameron, age
6. Keiren, age 5, Amy, age 8, Sophie and Chloe, age 12. All the children
will be wearing yellow T-shirts and black shorts. Each t-shirt will have a symptom
on the back (example) Cameron has "I am severe pain."
Keiran, "I could be the youngest sufferer".
Others have I
am extreme fatigue, I am IBS, I am
disturbed sleep. Lucie is pushing the wheelchair with "I am a
carer". My stupid top hat will go with the rest of my stupid
outfit and say "I am Fibromyalgia"
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'Womans Hour' on Radio 4 features Fibromyalgia |
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( 33 minutes in and Real player may be required to listen to this programme.)
BBC Radio 4's Woman's Hour will be carrying out a piece on Fibromyalgia on Monday 8th September between 10am and 10.45am as part of FMA UK's Awareness Week.
 It will be featuring FMA UK Medical Advisory Board member Dr Ernest Choy, a consultant Rheumatologist and Director of Research and Development at King's College Hospital. It will also feature Janet Horton FMA UK trustee (you will also know her from the benefits helpline and the forum), and Barbara a sufferer.
Details are still subject to change and, from talking to the producer of the show, it sounds as if it will be a good piece on awareness week.
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Read more...
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Awareness Raising Coffee Afternoon in Blackpool |
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The Blackpool, Fylde and Wyre Fibromyalgia Suport Group are holding a coffee afternoon on Thursday 11th September. It will be held in the Town Hall Chamber from 12pm until 3pm and will be opened by the Mayor of Blackpool. Also attending will be Joan Humble MP.
The awareness raising event will include a tombola and raffle as well as refreshments with a suggested donation of £1. Anyone who would like to donate a raffle prize should contact with Chris on 593556 or Andrea on 358105.
All are welcome so please go along and join in if you can.
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FM on Black Country local radio |
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Below is a an excellent example of raising the profile of FM in your local community.Perhaps you can do something like this with local media in your area.
Black Country Group News
 (L -> R) Judith Peace,Pam Stewart, Susanne Trueman and Ann Tee.
For BCFMSG it was their first encounter with media interviews of the live
kind. Judith Peace , Treasurer was also at the studio listening in and
taking many photos with her niece Emma-Claire Moorcroft, for the group
newsletter. More write up may get to the FAMILY magazine in due
course!
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Sufferer Shares Her Story |
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Sally Russell from Dartford, a fibromyalgia sufferer, has shared her story to help raise awareness. Although only getting diagnosed with FM two years ago Sally thinks she may have had it since she was in a car accident when she was 17.
She has shared her story with Kent News in a bid to raise awareness in advance of Awareness Week. You can read the full article here.
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International Awareness Day Coffee Morning |
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This meeting was held on 12th May 2008 from 10.00am to 12noon in the Atlee Suite, Portcullis House, Westminster, London.
This was not a formal meeting but a time for sufferers and MPs to meet to discuss the problems we encounter living with fibromyalgia. As MPs are very busy people, most were unable to stay for the whole two hours but took the opportunity to come and meet their constituents during part of the morning.
It was good to meet up with groups from around the country as well.Rob Wilson, MP for Reading East and Chairman of the All Party Parliamentary Group on Fibromyalgia welcomed everyone and said that he hoped there were awareness events taking place all over Europe today because fibromyalgia is one of the ‘Cinderellas’ of the health business.
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Read more...
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The Ipswich Fibromyalgia Support Group are holding a charity day to raise awareness.
The event will take place on September 13th at The Lorraine Victory Hall, Ship Lane,
Bramford Village, near
Ipswich. There will be stalls, including craft, tombola, cakes and Gypsy Mel.
This is the first time the group have held such a big event and they have drafted in friends and family to help out. They have also let all members of the media know, from local papers to the local radio.
We hope everyone in the area can make it and don’t forget to tell all your family and friends too. It should be a great success and a wonderful way to get the word out and raise funds for the group as well.
Map/Directions to The Lorraine Victory Hall
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