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Eastbourne Fibro Support: Talk by Professor Puri |
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Eastbourne Support group are extremely proud to announce that Professor Basant Puri will be making a return visit to Eastbourne to speak again.
Professor B.K. Puri, a medical doctor and research scientist based at Hammersmith Hospital and Imperial College London, is a world-leading neuroscience and biochemistry expert. He has carried out pioneering research work in these fields. Indeed, he was the first in the world to treat a patient with depression using a pure fatty acid. Professor Puri's research findings have been described in scientific journals and in lectures at international medical and scientific conferences.
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Well done Rugby FM Support Group |
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 The Rugby Fibromyalgia Support Group held an Awareness Day event at the Benn Hall, Rugby on 12th May. It was the first ‘open day’ they had run and they invited 20 other voluntary and support groups to open stalls at the event, including ME, Mind, Pension Service, Guidepost Trust, Rugby Credit Union, Rugby Disability Group, to name but a few. They had a large turn out and were very busy with many prospective new members turning up for information and staying to chat for quite a while. The FM table couldn’t really be missed with it’s brightly coloured yellow with black polka dot table cloth on.
Special mentions and thanks go to the following for their help and support: Mary Clarke, Jackie Hart (Joint chairs) Sue and Richard Drage, Carol, Terri and Eric Stevenson, Pat Webb and Marcia Phillpott. Photos were taken by Maurice Clarke.
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International Fibromyalgia Awareness Day 12th May 2009 |
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A year has passed and what has changed?
In Brussels, the Written Declaration on Fibromyalgia won a majority of votes. This asks for all member states to recognise fibromyalgia and ensure diagnosis and treatment is available. It also states that research funding should be awarded for fibromyalgia. It is likely to be some time before we see the results of this as it is a slow process.
In the UK, the recommendation for guidelines for the treatment of fibromyalgia were not considered to be a priority by the National Institute of Clinical Excellence (NICE). This rejection by NICE which is independent from the government is a blow for UK fibromyalgia sufferers.
The annual report from the Government’s Chief Medical Officer Liam Donaldson, which included a whole section on pain and especially chronic pain, gave hope that at least this area of fibromyalgia might be given some attention but it is only part of the range of symptoms and cannot be treated in isolation.
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Medway Group's Fibromyalgia Awareness And Drop-in Day On 9th May |
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 On 9th May Fibromyalgia Support Group (Medway) held an Awareness and Drop-in Day at Greenacre School in Walderslade in celebration of International Fibromyalgia Awareness Day on 12th May. We were extremely pleased that the event was so well attended with well over 100 people coming through the door.
It was good to see a large number of our present members, and it was great that all the publicity that had been done for this event paid dividends, in that it brought along a large number of people who had Fibromyalgia but who had not previously heard of this support group.
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What has growth hormone got to do with FM? Quite a bit it would seem. This month we take a look at some of the latest research into the link between a lack of growth hormone and the symptoms of fibromyalgia and examine the various issues with obtaining growth hormone therapy.
Also, Julie Mcilmail tells us her inspirational story about her struggles with fibromyalgia and how she has found a new lease of life through managing a company called Girlracers, who are going to work with FMA UK to raise FM awareness.
With best wishes,
Kathy Longley (FMA UK Editor)(Subscribe to FaMily Magazine to get more of these articles)
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We are pleased to host once again a fibromyalgia conference in the North West. The conference is primarily aimed at both sufferers and medical professionals who want to broaden their knowledge of this condition. Our speakers are all experts in their fields and come from all over the country.
Liz Barber the secretary of the Hull and East Riding Fibromyalgia Syndrome Support Group writes to let us know how well their awareness day event went... The Hull & East Riding Fibromyalgia Syndrome Support Group held an Awareness Stand on Saturday 9th May at the Civic Hall in Cottingham.
General Articles