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Polkadotgals Launch Party! PDF Print E-mail
Thursday, 13 November 2008
Launch Party for 2009 CalendarOn Saturday the 8th of November the Polkadotgals launched the first Polkadotgals calendar, to help raise awareness of Fibromyalgia, at the episode hotel in Leamington Spa, the event was hosted by Polkadotgals Director Bianca Embley and featured appearance's from Polkadotgals ambassador Danni Wells and Miss England 2008 Laura Coleman, who lent her support to the Polkadotgals on her way to the Miss World competion in Johannesburg.

Following a champagne and canapé reception, guests were able to bid on a number of items donated by generous celebrities including Helen Mirren and Raymond Blanc. The launch was held in association with UK Charity FMA UK. Following the success of the evening the calendar is NOW available to purchase through this site just click on order here! Part of the profits realised from the sale of the calendar will be pledged to raise awareness of Fibromyalgia.

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Chance to appear on the NHS Website PDF Print E-mail
Wednesday, 12 November 2008
NHS Choices NHS Choices, the Department of Health's website for members of the public has contacted FaMily magazine looking to make a short film of someone who as been diagnosed with fibromyalgia. They’d like the person to tell their story - the moment they were diagnosed, how the condition affects their life on a daily basis, how they manage it, and any advice they have for others with the condition.

The video (about 3 mins long) would be published on the NHS Choices website. It would help raise awareness of the condition. An example of such a video can be found here.

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Fibromyalgia: The Physician's Curse? PDF Print E-mail
Monday, 10 November 2008
  Reprinted from Fibromyalgia Frontiers (Vol. 10, #4, 2002)

If you spend any time around persons with fibromyalgia (FM), sooner or later the conversation will turn to doctors. After all, for most FM patients physicians play a critical role, first in making an initial diagnosis and later in prescribing a treatmentnt program for what is a very complex and usually frustrating medical condition. Not surprisingly, patients' comments about their medical practitioners run the gamut from enthusiastic, grateful, or respectful to defensive, angry, or incredulous.

Of course, many physicians have strong feelings about FM patients as well. I was reminded of this recently while listening to the audiotapes of two presentations given by rheumatologist Thomas Romano, M.D., Ph.D., at the National Fibromyalgia Partnership's May 2002 conference, Fibromyalgia: Facing the Future, in Orlando, Florida. While speaking on the topics of post-traumatic fibromyalgia and alternative medicine, Dr. Romano took time to consider common physician attitudes about fibromyalgia and the reasons for them.

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Guide to Employment and Support Allowance (ESA) PDF Print E-mail
Tuesday, 28 October 2008

This information is taken from the Benefits and Work website. There is a guide that Janet Horton our Benefits helpline Advisor can send to anyone who thinks they are likely to affected by the Employment and Support Allowance (ESA) in the near future. There is a test on the Benefits and Works website where you can find whether you are in the support group or work-related Activity group for this benefit - this is available to anyone you don't have to become a member of benefits and work to access this test.

Read the following Questions and Answers that will hopefully answer some of your questions on the newly introduced benefit. An important thing to remember is that if you are already in receipt of Incapacity Benefit then this will not affect you initially. Also this does not have any impact on DLA or Attendance allowance.

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November FaMily Magazine PDF Print E-mail
Tuesday, 28 October 2008
Ever fancied being a case study for a glossy magazine article on fibromyalgia? Well, last month Rosie Hickson was selected to be interviewed by Prima magazine. She was quite happy with the phone interview but horrified when she was told a photographer would be turning up on her doorstep. Read her amusing account of posing in a field of clover... 

Also, this month we put new trustee Des Quinn under the spotlight to find out his favourite hobbies and what his future hopes are for FMA UK.  (Subscribe to FaMily Magazine to get more of these articles)

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ENFA Declaration No. 69/2008 update 28th October 2008 PDF Print E-mail
Monday, 22 September 2008

The following list shows those UK MEPs who have signed Declaration 69/2008 as at 28th October 2008.

The UK total has now risen from 34 to 46 which is great, but we have a total of 78 MEPs so we still have a long way to go to ensure this Declaration is successful.

If your MEP has not signed yet, please contact them again to explain just how important it is for all fibromyalgia sufferers in the UK and Europe that we gain recognition by the signing of this Declaration.

ENFA Europe wide petition

After contacting your MEP please remember to sign the petition on the ENFA website as well. Just click on the image and fill in your details.

 

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