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It's a Scream! Stephen Roach runs and runs….. |
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 Stephen Roach is a seasoned runner who has taken part in 73 marathons. His
wife, Olive, has fibromyalgia and is in constant pain needing to use a
wheelchair to cope. So Steve has now decided to use his talents to raise
awareness and money for fibromyalgia. At the start line for the Blackpool half
marathon he certainly stood out in his Scream costume, a very apt outfit to
represent fibromyalgia!
As he ran he gave out numerous information flyers on
fibromyalgia and overall he raised £340 in sponsorship. Great going Stephen! As
if running a marathon wasn't taxing enough, Stephen is now planning to run up
and down Snowdon on 26th July, this time as Superman. Once again, he will
be handing out information leaflets and is collecting sponsorship. Well done
Stephen for turning your passion into such a positive awareness raising
initiative. We wish you well for your next run. To sponsor Stephen go to: www.justgiving.com/Stephenroach
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Better support for people suffering from chronic pain |
New plans to provide better services
for the thousands of people in Wales who suffer from chronically painful
conditions such as arthritis and serious back pain were issued today (Thursday,
19 June) by the Welsh Assembly Government Health Minister Edwina Hart.
Such conditions – termed chronic
non-malignant pain (CNMP) – can affect anyone at any age and from any social
background with evidence suggesting that some forms of chronic pain are more
prevalent in poorer areas.
One in four people with chronic pain report losing a job due to the barriers
presented by their condition, one in five say their pain is so bad they want to
die and a quarter have been diagnosed with depression because of their
condition.
If even 10 per cent of the population had such pain every day there would be
over two billion days of suffering in the UK – 30-40 days of pain for everyone.
In 2002, over 4 per cent of the working population in the UK was on
incapacity benefit, at a cost of ₤6.7bn. It is estimated that around one
quarter of those were provided with incapacity benefit due to chronic pain
conditions, mainly of the musculoskeletal system, including severe back pain.
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Don’t miss The Folly Pogs Ball |
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Driven by my passion to
find a cure for fibromyalgia, I am writing to invite you to the Folly
Pogs Ball on Friday September 12 2008 at The Chichester Park Hotel,
Westhampnett, Chichester, off the A.27. The proceeds from this evening to
remember with lots of laugh, fun and merriment, will be dedicated to funding
research on the way to finding a cure.
I have had words with
Sue Tait, our caring and supportive Coordinator for the East Hants Borders
Fibromyalgia Philanthropists Support Group (the Folly Pogs) of which I am
chairman, and in spite of all Sue's cares and woes at this time, she
felt it would be fine to send out this invitation to fibromites and
groups as some may consider bringing a coach load of members. Sue was
intending to mention this herself but as you may know she is pretty busy
in a London hospital with her husband. Ian, at the moment. We are all
praying for a a speedy return to good health for Ian and hope that
Sue stays free of flares and aches and pains.
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 Have you considered trying the expert patient programme? This month, Ann Tee from the Black Country support group, explains how this course originated and how it could possibly help you cope with living with fibromyalgia. Anne was so impressed with the course that she trained to be a tutor to teach others the skills she had learnt.
Also, read about raising national awareness as Pam Stewart attends a European meeting in Brussels and the FM awareness coffee morning takes place at Westminster.
With the summer now in full swing, you may be setting off on holiday either abroad or in this country. Why not write in and tell us about your adventures.
With best wishes,
Kathy Longley (FMA UK Editor)(Subscribe to FaMily Magazine to get more of these articles)
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A Day in the life of a FMA UK Helpline volunteer |
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What follows is a day in the life of a FMA UK Helpline volunteer. These are the people on the other end of the phone when you perhaps need some help on the phone. They all suffer FM as well and get a lot out of providing this service.
Working on the FMA UK helpline is certainly a varied and rewarding experience. For me, I am glad to play my part in helping other people with FM by simply listening to them and letting them know that I understand what they are going through.
The calls can be very varied from people simply phoning to find out if there is a group near them or to place an order when the office is closed, to people who are newly diagnosed and scared because they have been told they have a chronic illness, with no cure and don't know anything about it.
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