Fibromyalgia Association UK
BBC WatchDog are looking for your stories on ATOS
Last Updated on Wednesday, 01 February 2012 23:19 Written by Des Quinn (A) Wednesday, 01 February 2012 23:13
BBCWatchdog tweeted the following today:
I am sure that there are many with fibromyalgia that have had this experience. Please get in touch with here to submit your story. Perhaps this will have fibromyalgia featured on the programme.
Book Review - Paintracking your personal guide to living well with chronic pain
Last Updated on Wednesday, 21 December 2011 10:14 Written by Margaret Robson Sunday, 18 December 2011 08:32
When I was asked to review this book I had thought that I’d be able to skim read it but as I started to read I knew that this was impossible as I felt, as I was reading, that this book was written for me. Having Fibromyalgia I was able to identify with so much in the book and found myself so engrossed in what I was reading that I wanted to read and devour every line.
Deborah says that this book that she has written is the book that she wishes someone had given her when she was first diagnosed. I run a support group for 300 people with Fibromyalgia and have set up seven other groups in Kent in England, and this will be the book I will be recommending to everyone. It really is a ‘must read’ for anyone with a chronic pain condition.
Read more: Book Review - Paintracking your personal guide to living well with chronic pain
Music Magpie scheme - Donate your old CDs and DVDs !
Last Updated on Monday, 23 January 2012 09:36 Written by Des Quinn (A) Sunday, 22 January 2012 11:21
Please Get Involved Today If You Have These Items To Spare !
Recycle & Help Fundraise For FMA UK by donating your old CDs or DVDs. If your interested in supporting FMA UK please contact Music Magpie on 08702 957 930.
FMA UK are piloting a new scheme to help you turn unwanted CDs & DVDs into cash for much needed fibromyalgia projects. We've teamed up with Music Magpie to offer you an easy way to recycle your old CDs and DVDs. Music Magpie have agreed to pay us 50p for every CD Album/DVD that meets their criteria. More information on their criteria below.
So what do you have to do to get your old music and films to Music Magpie:
- Phone 08702 957 930 and ask for a free collection box
- Collect as many CDs and DVDs as you can
- Arrange a free courier to pick up your collection
- musicMagpie will pay 50p for every CD album & DVD re-cycled
You can also get others to donate their unwanted CDs and DVDs by putting up a poster at your workplace or group?
Read more: Music Magpie scheme - Donate your old CDs and DVDs !
FMA UK Newsletter Winter 2011
Last Updated on Saturday, 21 January 2012 23:15 Written by Des Quinn (A) Saturday, 14 January 2012 16:19
Welcome to the winter newsletter from the trustees of FMA UK. A PDF version of the original Winter Newsletter can be found here. Our Trustee newsletters attempt to bring a view of what the trustees have been engaged in since the previous newsletter. We are the first to admit that these newsletters are not as frequent as we would like but we will try to keep you all as informed as we can.This newsletter covers the past 6 months and also gives an insight into some of the activities that we have planned for the coming year. We hope to have an exciting, busy and eventful year ahead of us. We also hope to engage with more people and have more volunteers helping out with the charity. We can only achieve our goals if we have the people to share the work.
Of course if anyone has any questions or something to help the charity then please do get in touch with a Trustee or Regional Coordinator.
Many thanks
Board of Trustees
Survey: Do you experience Fibro Fog
Last Updated on Monday, 06 February 2012 11:38 Written by Des Quinn (A) Monday, 06 February 2012 11:33
My name is Sarah Marland; I am a mature student in my final year at Keele University, studying a Neuroscience and Psychology Dual Donors Degree. As part of my final year of study in the School of Psychology, I have designed a research project, titled ‘Cognition in Fibromyalgia’. I have chosen this as my area of research, as Fibromyalgia has had an influence on my family’s life since 2002 when my partner began to experience symptoms of the condition.
‘Fibro fog’ has been described as a frustrating blurring of mental clarity experienced by large numbers of fibromyalgia sufferers, for example;
“I had the remote control a minute ago, now where have I put it again?” or “I must turn the oven off at 3 o’clock,”.......... the time comes and you find yourself standing in the kitchen, knowing you came in for something? But what was it? Or that feeling when you’re trying to find the name of someone or something...... it’s right on the tip of your tongue .......but it just will not come. These are just a few examples of how ‘Fibro Fog’ could affect your day to day life.
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