niki
Probationer
Posts: 2
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« Reply #120 on: 12/09/08 19:12 » |
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What a fantastic story, which I must admit made me want to cry. I will certainly use it to try and explain to people. Thanks x
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pip
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« Reply #121 on: 23/09/08 16:41 » |
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I can't tell you how true that sounds. For the first time in 10 years I feel fortunate that I have fibromyalgia (thank god I don't have lupus!)
Pip x
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LynH
Jr. Member
Gender: 
Location: Durham
Posts: 51
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« Reply #122 on: 11/10/08 10:10 » |
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Now I can explain to my two lads what it is I have and how I will have to cope. It is so hard trying to explain. What a fantastic story. LynH
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Whatever happens, happens for a reason!
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Mad Mum Madz
Newbie
Gender:
Location: Cambs, UK
Posts: 14
Suspected FM - plus SPD, HMS, OA - Confused yet?
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« Reply #123 on: 14/10/08 14:23 » |
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I have just been told I may have FM and this explains just how I feel. I am also disabled through another condition and that also explained a lot about how I feel with that.
I have sent it to my husband, parents and family. I hope it makes it easier to explain why I struggle with the simple things sometimes, esspecially at the end of the day.
Thanks for posting it.
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Love Madz x www.madmums.com"A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort." Have SPD, HMS, Arthritis and possible FM. Mad mummy to wonderful son Edward - my life! |
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queentutti
Probationer
Gender:
Location: Liverpool
Posts: 3
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« Reply #124 on: 19/10/08 21:18 » |
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I have just read The Spoon Theory and I think its a great way to explain things to people. I know I get fed up explaining sometimes.
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pookiemae
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« Reply #125 on: 24/10/08 20:29 » |
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Wow. That was really good!
Quite sad though, but what a good thing to show family and friends. It might make them understand a bit more.
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susiesea
Probationer
Posts: 1
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« Reply #126 on: 11/11/08 21:51 » |
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Hi, I am new to this so not sure how to contribute, but I have just read the Spoon Theory and it was incredibly accurate.
I am blessed in that my husband, children and 1 of my siblings are brilliant at anticipating what I need, or how much free rein to allow me cos I get the tiniest bit stroppy when they say not to do this or that (stroppy, me!) but my other siblings think it's some kind of depression or laziness.
I was given this e-mail address by my GP who is great as well, I count myself as one of the really lucky ones.
Thank you for all the comments/forums/stuff I haven't looked at yet, it suddenly feels a lot less lonely,
Susiesea.
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sheila53liz
Public Moderators
Godlike Member
Gender:
Location: South Wales
Posts: 23,426
Liverpool FC OK!
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« Reply #127 on: 11/11/08 22:18 » |
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Welcome to you Susiesea and what a good doctor you have to point you in our direction.
Just post whatever you need help with or join in wherever you want. If you should post in the wrong place, us mods will help sort it out for you and the more you post ( at least 10), the more of the forum will be open to you too.
Nice to meet you,
Sheila
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As a Public Moderator of this forum, my opinions/views expressed are personal and they are no more valid than those of other members and not necessarily those of FMAUK.Sheila x click to Get Involved with FMA UK
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LindaA
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« Reply #128 on: 31/12/08 18:14 » |
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I have just read this and it is fantastic. Link is being sent to all my friends and family
Thanks agaion for that!!
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Before you critisize someone, walk a mile in their shoes....That way you will be a mile from them and have their shoes. www.justgiving.com/lindaaustinBlessed Be. |
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sheila53liz
Public Moderators
Godlike Member
Gender:
Location: South Wales
Posts: 23,426
Liverpool FC OK!
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« Reply #129 on: 01/01/09 15:50 » |
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There are two other useful items on the Useful Information which may help explain how FM affects you...
Look for the Letter to Normals and a Simple Explanation of FM.
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As a Public Moderator of this forum, my opinions/views expressed are personal and they are no more valid than those of other members and not necessarily those of FMAUK.Sheila x click to Get Involved with FMA UK
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LindaA
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« Reply #130 on: 01/01/09 16:56 » |
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The letter to normals has been sent!!
Made my mum cry but she understands a bit better now, bless her
linda x
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Before you critisize someone, walk a mile in their shoes....That way you will be a mile from them and have their shoes. www.justgiving.com/lindaaustinBlessed Be. |
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Susie H
Newbie
Gender:
Location: Northamptonshire
Posts: 11
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« Reply #132 on: 11/01/09 20:57 » |
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Ok, it made me cry to, some of that for her and some of it for me, for the stuff I used to do that I'll never do again.
Me and the OH have motor bikes, and a couple of months ago mine had a problem just as we were going to work, so my OH told me to jump on the back of his and we'd look at mine in the morning, I just couldn't do it, I couldn't lift my leg high enough to clear the back rest and sit pillion. One more thing I cant do any more, my daughter gave me a lift in and Paul was still out side when I got there. I cried all over him, every thing I cant do any more seems to make my world a little smaller and so many people don't get it, they see the same crazy mare, saying and doing the same stuff, I think 'spoons' is a great way of explaining it to people
Thankyou.
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Its never to late to be what you've always wanted to be.
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Poohtle
Jr. Member
Gender:
Location: East Anglia
Posts: 204
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« Reply #134 on: 05/02/09 21:28 » |
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That was excellent, thanks.
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